catlady
Cheer Parent
- Jun 6, 2012
- 2,797
- 6,209
I grew up as a Guinea Pig---14 different experimental chemo's. A handful of those today are on the market curing kids everyday. Research studies are awesome, imo.
I was in a clinical trial for an antibiotic after getting strep 13 times in one season (or rather one, really long, un curable case that took over 13 rounds of antibiotics)
I still remember the taste and dry heave at the thought of it, but yay science!
Wow, I have much respect for you all! Cp had a port so we were willing to have them pull an extra vial here and there, DH and I gave blood for genetic reasons and Rh factor studies (cp is Rh pos and I'm Rh neg), and we answer questions. All ITP trials are tested on adults for many years before they allow them to test on kids and since cp responded to IVIg, we knew she would never be asked. SL&AM, if you tried Rituxan or 6MP, those were the two chemo's that finally brought her into the safe zone, she no longer has to be treated and her numbers continue to rise at a snails pace. You all rank right up there with the bravest of brave soldiers in my book, thank you!